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Voluntary Self-Disclosure and Self-Advocacy — Neurodiversity-Affirming

Voluntarily disclose stuttering to a chosen audience and self-advocate for accommodations or conversational space, supporting identity, agency, and reduced concealment.

Domain: fluency Settings: school, private-practice Support: minimal Severity: varies Age: grades 4-12 Neurodiversity-Affirming

The Four Questions

Conditions
In real or rehearsed communicative contexts identified by the student (classroom, group project, social situation)
Observable Behavior
[Student] will voluntarily disclose stuttering and/or request a specific accommodation or conversational behavior (e.g., 'I stutter — please don't finish my sentences')
Measurable Criteria
in 3 of 5 self-selected opportunities across 4 weeks, with student-rated success on a self-defined rubric
Measurement Method
as measured by student self-report log, optional partner debrief, and SLP review with the student

Full Goal

In real or rehearsed communicative contexts identified by the student (classroom, group project, social situation), [Student] will voluntarily disclose stuttering and/or request a specific accommodation or conversational behavior (e.g., ‘I stutter — please don’t finish my sentences’) in 3 of 5 self-selected opportunities across 4 weeks, with student-rated success on a self-defined rubric, as measured by student self-report log, optional partner debrief, and SLP review with the student.

Neurodiversity-Affirming Notes

Fluency goals that target reduced stuttering frequency assume that stuttering itself is the problem to be removed. Research and lived-experience advocacy from the stuttering community (NSA, StutterTalk, Constantino’s “stuttering pride” work) frame stuttering as a way of speaking, not an impairment to suppress. Concealment — avoidance of words, situations, and disclosure — is associated with greater anxiety and lower communicative participation than the stuttering itself.

This goal targets agency and disclosure rather than fluency:

  • Disclosure is a skill. When, to whom, and how to tell a listener about stuttering is a learnable, generalizable communicative skill. It is a counter to the secrecy that compounds the lived experience of stuttering.
  • Self-advocacy is the second half. Disclosure alone may be passive (“just so you know”). Pairing it with a specific ask (“please don’t finish my sentences,” “I need a few extra seconds”) teaches the student to shape conversational conditions in their favor.
  • The student defines success. A “successful” disclosure for one student is matter-of-fact; for another it is whispered to one trusted person. The SLP does not impose a script or a tone. Score against the student’s rubric, not a clinician’s.
  • Fluency-shaping is not the foundation. This goal does not require the student to use fluency-enhancing techniques. It can stand alone or pair with other goals, depending on what the student wants.
  • The IEP team needs orientation. Parents and teachers may expect “stuttering reduction” goals. Be explicit in the IEP meeting that this goal targets self-advocacy because the evidence supports it and the student wants it. Get student assent.

Individualization Guidance

Before using this goal, verify:

  • Student is part of the goal-setting process. A self-advocacy goal that the student did not co-design is paradoxical. Use age-appropriate goal-planning conversations and the OASES Impact and Reactions subscales as conversation anchors.
  • Audience selection is the student’s. A 4th-grader may start with one trusted friend. A high-schooler may start with a teacher or a coach. The clinician’s job is to scaffold preparation, not pick the audience.
  • Rehearsal is part of the work. Role-play disclosures in session, including with anticipated awkward reactions. The first real disclosure is rarely the smoothest, and rehearsal protects against a discouraging early failure.
  • “Did it work?” is the wrong question. Replace with “Did you say what you wanted to say?” Success is the student’s exercise of agency, regardless of the listener’s response.
  • Document risks. Some contexts (bullying, hostile teachers, certain family dynamics) are not safe for disclosure. Goal selection includes context risk assessment.

Clinical Notes

The “3 of 5 self-selected opportunities” criterion is intentionally not “80% accuracy.” Self-advocacy is not a percentage; it is a count of acts taken. Lower-frequency, higher-meaning events are the substrate.

The 4-week window respects the reality that disclosure opportunities don’t arise on a therapy schedule. The student needs runway to identify and act on real contexts.

The self-defined rubric is the most important feature of this goal. It moves the locus of evaluation from the clinician to the student, which is the entire point. Sample rubric items: “I said what I wanted to say.” “I felt OK after.” “I would do it again.” Avoid items the clinician would write reflexively: “I sounded confident.” “I made eye contact.” Those import neurotypical communication norms and undermine the goal.

The current state of fluency research and stuttering-community advocacy supports moving school-age fluency goals in this direction. Goals that target reduced stuttering frequency without student buy-in remain common but are increasingly questioned in the literature.

  • (No companion fluency goal yet — see Childhood Fluency Disorders Practice Portal for related goal patterns.)

Evidence Base

  • ASHA Practice Portal: Childhood Fluency Disorders
  • Constantino, C.D. (2018). Stuttering pride: Spontaneous stuttering. Seminars in Speech and Language, 39(4).
  • Byrd, C.T., Croft, R., Gkalitsiou, Z., & Hampton, E. (2017). Clinical utility of self-disclosure for adults who stutter. Journal of Fluency Disorders, 51.
  • Yaruss, J.S., & Quesal, R.W. (2006). Overall Assessment of the Speaker's Experience of Stuttering (OASES). Journal of Fluency Disorders, 31(2).
  • Plexico, L.W., Manning, W.H., & Levitt, H. (2009). Coping responses by adults who stutter: Part II. Approaching the problem and achieving agency. Journal of Fluency Disorders, 34(2).
  • National Stuttering Association (NSA) — community resources and lived-experience materials
  • IDEA (34 C.F.R. § 300.320) — IEP measurability requirements

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