Voluntary Self-Disclosure and Self-Advocacy — Neurodiversity-Affirming
Voluntarily disclose stuttering to a chosen audience and self-advocate for accommodations or conversational space, supporting identity, agency, and reduced concealment.
The Four Questions
Full Goal
In real or rehearsed communicative contexts identified by the student (classroom, group project, social situation), [Student] will voluntarily disclose stuttering and/or request a specific accommodation or conversational behavior (e.g., ‘I stutter — please don’t finish my sentences’) in 3 of 5 self-selected opportunities across 4 weeks, with student-rated success on a self-defined rubric, as measured by student self-report log, optional partner debrief, and SLP review with the student.
Neurodiversity-Affirming Notes
Fluency goals that target reduced stuttering frequency assume that stuttering itself is the problem to be removed. Research and lived-experience advocacy from the stuttering community (NSA, StutterTalk, Constantino’s “stuttering pride” work) frame stuttering as a way of speaking, not an impairment to suppress. Concealment — avoidance of words, situations, and disclosure — is associated with greater anxiety and lower communicative participation than the stuttering itself.
This goal targets agency and disclosure rather than fluency:
- Disclosure is a skill. When, to whom, and how to tell a listener about stuttering is a learnable, generalizable communicative skill. It is a counter to the secrecy that compounds the lived experience of stuttering.
- Self-advocacy is the second half. Disclosure alone may be passive (“just so you know”). Pairing it with a specific ask (“please don’t finish my sentences,” “I need a few extra seconds”) teaches the student to shape conversational conditions in their favor.
- The student defines success. A “successful” disclosure for one student is matter-of-fact; for another it is whispered to one trusted person. The SLP does not impose a script or a tone. Score against the student’s rubric, not a clinician’s.
- Fluency-shaping is not the foundation. This goal does not require the student to use fluency-enhancing techniques. It can stand alone or pair with other goals, depending on what the student wants.
- The IEP team needs orientation. Parents and teachers may expect “stuttering reduction” goals. Be explicit in the IEP meeting that this goal targets self-advocacy because the evidence supports it and the student wants it. Get student assent.
Individualization Guidance
Before using this goal, verify:
- Student is part of the goal-setting process. A self-advocacy goal that the student did not co-design is paradoxical. Use age-appropriate goal-planning conversations and the OASES Impact and Reactions subscales as conversation anchors.
- Audience selection is the student’s. A 4th-grader may start with one trusted friend. A high-schooler may start with a teacher or a coach. The clinician’s job is to scaffold preparation, not pick the audience.
- Rehearsal is part of the work. Role-play disclosures in session, including with anticipated awkward reactions. The first real disclosure is rarely the smoothest, and rehearsal protects against a discouraging early failure.
- “Did it work?” is the wrong question. Replace with “Did you say what you wanted to say?” Success is the student’s exercise of agency, regardless of the listener’s response.
- Document risks. Some contexts (bullying, hostile teachers, certain family dynamics) are not safe for disclosure. Goal selection includes context risk assessment.
Clinical Notes
The “3 of 5 self-selected opportunities” criterion is intentionally not “80% accuracy.” Self-advocacy is not a percentage; it is a count of acts taken. Lower-frequency, higher-meaning events are the substrate.
The 4-week window respects the reality that disclosure opportunities don’t arise on a therapy schedule. The student needs runway to identify and act on real contexts.
The self-defined rubric is the most important feature of this goal. It moves the locus of evaluation from the clinician to the student, which is the entire point. Sample rubric items: “I said what I wanted to say.” “I felt OK after.” “I would do it again.” Avoid items the clinician would write reflexively: “I sounded confident.” “I made eye contact.” Those import neurotypical communication norms and undermine the goal.
The current state of fluency research and stuttering-community advocacy supports moving school-age fluency goals in this direction. Goals that target reduced stuttering frequency without student buy-in remain common but are increasingly questioned in the literature.
Related Goals
- (No companion fluency goal yet — see Childhood Fluency Disorders Practice Portal for related goal patterns.)
Evidence Base
- ASHA Practice Portal: Childhood Fluency Disorders
- Constantino, C.D. (2018). Stuttering pride: Spontaneous stuttering. Seminars in Speech and Language, 39(4).
- Byrd, C.T., Croft, R., Gkalitsiou, Z., & Hampton, E. (2017). Clinical utility of self-disclosure for adults who stutter. Journal of Fluency Disorders, 51.
- Yaruss, J.S., & Quesal, R.W. (2006). Overall Assessment of the Speaker's Experience of Stuttering (OASES). Journal of Fluency Disorders, 31(2).
- Plexico, L.W., Manning, W.H., & Levitt, H. (2009). Coping responses by adults who stutter: Part II. Approaching the problem and achieving agency. Journal of Fluency Disorders, 34(2).
- National Stuttering Association (NSA) — community resources and lived-experience materials
- IDEA (34 C.F.R. § 300.320) — IEP measurability requirements